Today was our first day on the wards with the new book PATIENCE, a deep baptism. Reading these poems in the place where they first came into being, often in circumstances of great suffering, was very moving - the response from patients was powerful and generally positive, though sometimes they too were a little overwhelmed. It was as if we were finally talking about the 'elephant in the room' - everyone's relieved, but it's an awkward moment.
"It brings a new outlook from my point of view, reading this book. It makes you think of something else in life, apart from yourself. You cheer one another up." (Madeleine)
"It's terrible in here, impossible to describe. You have to live it to understand. It can help a little to hear other's experiences. A little. Please come back again and read more poems." (Douglas)
"Very good that, very true. Pass it on... It's openness. You bring things out in people, so people don't close to you... a book like this is useful to read, helps with the patience, you need a lot of patience in here." Jean
We also shared the book with staff, many of whom remembered particular people featured in the collection. As so often happens, they said that they wished they still had time to talk to the patients as we are able to do.
"The emotional side gets overlooked. Without that, you are not treating people in depth. If a patient is in the process of getting better and they have psychological or emotional problems, they won't get better as easily. To verbalise and express their problems, they feel lighter, better... If it's repressed it affects them.
Conversing with them helps. They are away from their environment, in fear. Time is a factor. Take a minute or two, take time to listen and reassure them. Reading them this book will give them an idea of what a patient can expect to go through."
(Staff Nurse Mioji Baloguh)
On E1 the Stroke ward, we read poems to patients Madge and Marjorie, they commented:
"You feel very shaky and that, not kind of with it, you can't vision yourself. This book, it gives other people something of what you feel like."
A daughter, visiting her mother who'd had a stroke two weeks ago, said:
"The book would be nice for when they start recovering and can start reading - if they can't put their feelings into their own words, they could use the book to help." (Amanda)
We hope that PATIENCE will be helpful on the wards, a conversation opener, a comforter and perhaps a communication aid as Amanda describes. There's a point when a book, having been published, starts make its own way, separate from the the makers. As we put PATIENCE out into the world, it is now starting to do just that, to have its identity inscribed by its readers.
Showing posts with label art. Show all posts
Showing posts with label art. Show all posts
Tuesday, 21 September 2010
Wednesday, 15 September 2010
The Art of Nursing
In response to our book Patience, Advance Nurse Practitioner, Fiona Roscoe has written:
There were times when I was reading this book that the hairs on the back of my neck stood on end and I felt my eyes prick with tears. With over 20 years clinical experience I value and embrace those qualities which we consider as a profession to be 'the Art of Nursing'. What this book does however, is give you 'the Art of patients'. Connecting with the meanings of the pictures and words has been profoundly humbling.
Fiona Roscoe RN DN MSc BSc(Hons) is an Advanced Nurse Practitioner (Primary and Urgent Care)
There were times when I was reading this book that the hairs on the back of my neck stood on end and I felt my eyes prick with tears. With over 20 years clinical experience I value and embrace those qualities which we consider as a profession to be 'the Art of Nursing'. What this book does however, is give you 'the Art of patients'. Connecting with the meanings of the pictures and words has been profoundly humbling.
Fiona Roscoe RN DN MSc BSc(Hons) is an Advanced Nurse Practitioner (Primary and Urgent Care)
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Tuesday, 7 September 2010
Close-reading PATIENCE - by Matt Dalby
Matt Dalby is one of several contemporary poets we asked to repsond to PATIENCE. Here, Matt traces a path between two pieces: Be Patient by Margaret Hargreaves, the poem that states the theme of the collection, and a self-exploration of Parkinson's Disease by Doreen Jones, Thee Thy Summer.
Margaret Hargreaves’ Be Patient includes the line ‘was a dressmaker’. There is a sense here that Margaret may no longer be who she was, or at least may feel she is no longer who she was. But it is not a sentimental, nostalgic, ‘when I was younger’ reverie. It is a lot more interesting than that. Here are skills and experience, here is something that makes the loss or impairment of capabilities with illness become more real. Here is something that is often hidden.
Anecdote. An elderly Muslim man in Trafford walking slowly around two parks supported on either side by two young women who appear to be his daughters. The sight is only striking because it is so unusual.
But this is to make assumptions. The assumption that ‘was a dressmaker’ refers to Margaret Hargreaves herself. The assumption of impairment through illness. The assumption that the women supporting the elderly man are his daughters. The only assumption for which there is any evidence is the first of these:
‘I call myself
a quiet person
was a dressmaker
if a stitch went wrong
I set it right
in two words, two small words’
But without knowing the author, and without knowing how the poem was put together it is a dangerous assumption to make. And even if it were a simple statement of fact about the author it only provides limited information. Many people could say ‘was a shop assistant’ and it would tell you precisely nothing about them.
Even so, this is a relatively straightforward poem in comparison to a poem like Doreen Jones’ Thee Thy Summer, which is much more fragmented. Thoughts are abandoned partway through, broken into fragments, and revisited later. The kind of fractures recur throughout the collection. Numbers play a large role in the text, as if they are fixed points within a generalized confusion:
’21 x pills a day’
‘fell 4 x times’
‘7 in morning’
Some numbers, especially 21, recur in the poem. So too does 7. The poem itself is arranged in six stanzas of seven lines in pairs across three columns, which might be read as three sonnets. But there is an ambiguity introduced by fragmenting the poem that means the poem need not be read down each column in turn running left to right. It is also possible to read each line across the columns, or the first stanza of each column in turn. Both of these reading give a poem in two halves of 21 lines each.
The first stanza gives a good sense of how the poem is constructed, and contains words and phrases that recur in the rest of the poem:
’21 x pills a day
make sweet thy beauty
parkinson’s you see
started vertigo
dizzy all the while
fell 4 x times = smashed face
started parkinson’s’
’21’, ‘make sweet’, ‘thy beauty’, ‘parkinson’s you see’, ‘started’, ‘vertigo’, and ‘parkinson’s’ all appear again. Even while broken into pieces the poem circles itself, its own areas of concern, giving it a unity and coherence it might initially seem to lack.
This does not seem designed to imitate any particular mental confusion so much as it feels like an act of resistance. Illness is defined more by medication than by symptoms, and both are an inconvenience. And here and there some aspect of a person (the subject of the poem? the author?) keeps slipping out. This is not loss but an ongoing negotiation with life and illness.
From the four sections I have read this idea of an ongoing negotiation with life and illness is a consistent theme throughout the book. For me this allows for a far greater human interaction and identification with the experiences of the authors than some sentimental veneration of their wisdom and remembrance of things past. To acknowledge the frustrations, pain, anger and limitations of age-related illness is surely more healthy than a vague sympathy. It does not make for a comfortable read, and the poetry is not instantly recognizable as the personal reminiscence and anecdote in conventional forms you might expect from a project of this nature. To my mind this is a good thing. It is more interesting and compelling for the reader.
It would be interesting to know whether the experience of creating the book was more satisfying for the participants than just writing a set of conventional personal reminiscences. Certainly one of my initial thoughts in response to being approached to comment on the book was that experimental approaches, being less codified, less familiar, might be more accessible than more conventional poetry. We all have an idea of what conventional poetry should look like, and that it has a number of rules that we do not understand. These preexisting ideas can limit what we feel is possible, and therefore what we ultimately produce. Whatever the truth, the more experimental approach has led to a book you are actually likely to read and return to, rather than pick up out of sympathy and never open again.
Matt Dalby is an experimental poet whose works take shape within multiple approaches and mediums, including sound and visual making. His blog Santiago's Dead Wasp is a key journal of experimental writing and related events in the North West of England, as well as a document of Matt's ongoing project. His extraordinary communal Mutapoem is world-embracing.
Margaret Hargreaves’ Be Patient includes the line ‘was a dressmaker’. There is a sense here that Margaret may no longer be who she was, or at least may feel she is no longer who she was. But it is not a sentimental, nostalgic, ‘when I was younger’ reverie. It is a lot more interesting than that. Here are skills and experience, here is something that makes the loss or impairment of capabilities with illness become more real. Here is something that is often hidden.
Anecdote. An elderly Muslim man in Trafford walking slowly around two parks supported on either side by two young women who appear to be his daughters. The sight is only striking because it is so unusual.
But this is to make assumptions. The assumption that ‘was a dressmaker’ refers to Margaret Hargreaves herself. The assumption of impairment through illness. The assumption that the women supporting the elderly man are his daughters. The only assumption for which there is any evidence is the first of these:
‘I call myself
a quiet person
was a dressmaker
if a stitch went wrong
I set it right
in two words, two small words’
But without knowing the author, and without knowing how the poem was put together it is a dangerous assumption to make. And even if it were a simple statement of fact about the author it only provides limited information. Many people could say ‘was a shop assistant’ and it would tell you precisely nothing about them.
Even so, this is a relatively straightforward poem in comparison to a poem like Doreen Jones’ Thee Thy Summer, which is much more fragmented. Thoughts are abandoned partway through, broken into fragments, and revisited later. The kind of fractures recur throughout the collection. Numbers play a large role in the text, as if they are fixed points within a generalized confusion:
’21 x pills a day’
‘fell 4 x times’
‘7 in morning’
Some numbers, especially 21, recur in the poem. So too does 7. The poem itself is arranged in six stanzas of seven lines in pairs across three columns, which might be read as three sonnets. But there is an ambiguity introduced by fragmenting the poem that means the poem need not be read down each column in turn running left to right. It is also possible to read each line across the columns, or the first stanza of each column in turn. Both of these reading give a poem in two halves of 21 lines each.
The first stanza gives a good sense of how the poem is constructed, and contains words and phrases that recur in the rest of the poem:
’21 x pills a day
make sweet thy beauty
parkinson’s you see
started vertigo
dizzy all the while
fell 4 x times = smashed face
started parkinson’s’
’21’, ‘make sweet’, ‘thy beauty’, ‘parkinson’s you see’, ‘started’, ‘vertigo’, and ‘parkinson’s’ all appear again. Even while broken into pieces the poem circles itself, its own areas of concern, giving it a unity and coherence it might initially seem to lack.
This does not seem designed to imitate any particular mental confusion so much as it feels like an act of resistance. Illness is defined more by medication than by symptoms, and both are an inconvenience. And here and there some aspect of a person (the subject of the poem? the author?) keeps slipping out. This is not loss but an ongoing negotiation with life and illness.
From the four sections I have read this idea of an ongoing negotiation with life and illness is a consistent theme throughout the book. For me this allows for a far greater human interaction and identification with the experiences of the authors than some sentimental veneration of their wisdom and remembrance of things past. To acknowledge the frustrations, pain, anger and limitations of age-related illness is surely more healthy than a vague sympathy. It does not make for a comfortable read, and the poetry is not instantly recognizable as the personal reminiscence and anecdote in conventional forms you might expect from a project of this nature. To my mind this is a good thing. It is more interesting and compelling for the reader.
It would be interesting to know whether the experience of creating the book was more satisfying for the participants than just writing a set of conventional personal reminiscences. Certainly one of my initial thoughts in response to being approached to comment on the book was that experimental approaches, being less codified, less familiar, might be more accessible than more conventional poetry. We all have an idea of what conventional poetry should look like, and that it has a number of rules that we do not understand. These preexisting ideas can limit what we feel is possible, and therefore what we ultimately produce. Whatever the truth, the more experimental approach has led to a book you are actually likely to read and return to, rather than pick up out of sympathy and never open again.
Matt Dalby is an experimental poet whose works take shape within multiple approaches and mediums, including sound and visual making. His blog Santiago's Dead Wasp is a key journal of experimental writing and related events in the North West of England, as well as a document of Matt's ongoing project. His extraordinary communal Mutapoem is world-embracing.
Friday, 16 July 2010
Download Patience
arthur+martha will soon be launching our new hardback book Patience. The art and poems contained in the book detail a wide variety of patients' responses to illness and to being in healthcare. Woven around these impressions are interviews with doctors and nurses.

This book helps ill people realise they’re not alone. What they find difficult may actually be normal. Many ill people have difficulties with tablets, emotions, and disability. It’s the sharing, the I’m not alone that is important. Professor Francis Creed
To download a sample chapter, please visit our website at http://www.arthur-and-martha.co.uk
Friday, 12 February 2010
phantom pain
from my sketchbook, 'Phantom Pain' © Lois Blackburn 2010. (Of course the Phantom Pain in question would be felt in the missing leg, not as illustrated here- in the existing leg!)Gammy Leg
started out cellulitis
like a rash creams and lotions managed
but you know how it goes
down the leg
on the foot
then they wanted to meet
can’t remember Christmas
my leg
could sit here and cry for eternity
wouldn’t put my leg back
occasionally I forget
roundabouts
going longer between spaces
I have phantom pains
like an itch a weird sensation
I want to scratch my foot
the foot’s not there
try to master mind over matter
can’t scratch phantom pains
sometimes it works
sometimes I still forget
Anonymous 8th July 2009
Tuesday, 9 February 2010
heart
Here's a page from my sketch book, based on the human heart, with selected lines from the poem 'Paracetamol Soup'. You can find more of my illustrations at www.loisblackburn.co.ukParacetamol Soup
love
(what’s wrong with it?) can’t do without
home
the most important place
(love when I think of home)
love it’s true I daren’t say it
the bank writing me love letters
security, savings, minus, plus
my dad singing over the rainbow
throwing coins in the air
noisy
movement
my brother is bent double with arthritis
I am an expert in pain disabled incurable
backache we’ve all got it why haven’t you?
you’ve got to drink gallons and gallons of
paracetemol soup
we’ve all got it like income tax
there’s no escape
bloody hell, miracles
luck
love
(what’s wrong with it?) can’t do without
home
the most important place
(love when I think of home)
love it’s true I daren’t say it
the bank writing me love letters
security, savings, minus, plus
my dad singing over the rainbow
throwing coins in the air
noisy
movement
my brother is bent double with arthritis
I am an expert in pain disabled incurable
backache we’ve all got it why haven’t you?
you’ve got to drink gallons and gallons of
paracetemol soup
we’ve all got it like income tax
there’s no escape
bloody hell, miracles
luck
love
Louis Marx, Margot Blake, Gloria Ordman
October 2007
October 2007
Monday, 8 February 2010
notable dates (a Kingdom)
my mind to me a Kingdom
has come to me in illness
in sickness
in my body
my mind
*
isn’t captivated
not shut in
here, but let’s face it
could be by the sea
walking on pebbles or moors in Yorkshire
surrounded by moors in happiness or anger
my mind is a Kingdom
although you’re in
*
the ward you
can take yourself out any time
some learn to live with poverty or riches
some with illness
if you suffer for very long
have to say: not going under
count your blessings one by one one by one by one
(a Kingdom: I like to think I’m by the prom
the noise of the pebbles
one by one by one)
***
you get an affliction
get very resentful
have to adapt to
ageing
those beech leaves just turning red
*
a body case
*
can’t case your mind
you adapt
see someone a lot worse
live with your limitations
when you’re in a lot of pain
teaches you something
teaches patience
*
Queenie Wall, Catherine Cannon, Irene Corringan, Mary Hulme
November 2008
has come to me in illness
in sickness
in my body
my mind
*
isn’t captivated
not shut in
here, but let’s face it
could be by the sea
walking on pebbles or moors in Yorkshire
surrounded by moors in happiness or anger
my mind is a Kingdom
although you’re in
*
the ward you
can take yourself out any time
some learn to live with poverty or riches
some with illness
if you suffer for very long
have to say: not going under
count your blessings one by one one by one by one
(a Kingdom: I like to think I’m by the prom
the noise of the pebbles
one by one by one)
***
you get an affliction
get very resentful
have to adapt to
ageing
those beech leaves just turning red
*
a body case
*
can’t case your mind
you adapt
see someone a lot worse
live with your limitations
when you’re in a lot of pain
teaches you something
teaches patience
*
Queenie Wall, Catherine Cannon, Irene Corringan, Mary Hulme
November 2008
Monday, 20 July 2009
shut in now


shut in now
to feel free
just want to jump
in
anon
recycled postcard, pen, glue
2009
Made in collaboration with arthur+martha guest artist Anneke Kuipers.
One in five people over 65 are alone for more than 12 hours a day
"Britain’s older people are living in isolation‚ with those over the age of 65 twice as likely as other age groups to spend over 21 hours of the day alone.
The NOP survey of 1‚000 people found that one in five people over 65 spend more than 12 hours of every day on their own. These people are more at risk of depression and ill-health caused by isolation and loneliness.
More than a quarter of people over 65 do not have a best friend‚ which is higher than any other age group. A third of people over 65 see their local supermarket as somewhere to socialise and get out of the house and one in five people eat their meals there rather than at home." http://www.ageconcern.org.uk
Friday, 3 July 2009
Stroke Ward

In the afternoon, I met up with Jean Lally who was kindly offering her services as a volunteer. We had our first session at the Stroke Ward at Stepping Hill Hospital, Stockport. Its always going into the unknown when you start at a new venue- the participants, the staff, the environment all are to be discovered. We worked with three women, each one shared with amazing candor their experiences - one had been in hospital for 28 weeks and was fighting depression, God and her disability, she was full of anger- 'if I don’t hurry up I’ll be dead' Another women was the main carer for her Aunt, the determination to get home- so that she could resume her caring responsibility our conversation was humbling..'to get well as soon as possible and get back to my Aunt that I care for and love- there's only the two of us- just want a normal quiet life, anything would do.' And then there was the woman who spoke in such a matter of fact way about her devastating conditions 'I have not only one problem, not only a stroke but Inclusion Bodies Myisitis- a form of MS or motor neuron a muscle wasting disease. There's no way to stop it, no way to help it, not for me anyway.'
All three women shared such strength and determination it was inspiring and an honor and a privilege to talk with them.
Thursday, 2 July 2009
Wednesday, 1 July 2009
Stroke
Monday, 29 June 2009
Had a fall last night

Had a fall last night, from the collection 'Our needs are very small' a series of Ltd edition postcard size photo/poems from our archive. They show the view from older people’s hospital beds, or their accommodation in residential housing. These photos were taken by the participants themselves, or else directed by them. Their words were selected from conversations with each participant – offering sidelong, poetic views on how it feels to be in a care environment.
Slips, trips and falls are a very common cause of accidents with hundreds of thousands of incidents reported each year. Falls often result in serious injury, often to bones and joints, and there are many fatalities, particularly among older people and people at work.
Accidental falls are by far the biggest killer in the home. An estimated 1,000 older people die each year from a fall on stairs. Falls cause the most deaths and long-term health problems among older people. NHS website http://www.nhs.uk
Wednesday, 10 June 2009
Senseless

Another support group we plan to work with who meet at Walthew House, http://www.walthewhouse.org.uk/ are a group of people who are deaf or hard of hearing. Thinking of artists who have also been inspired by the topic, I immediately came up with my good friend the very talented Jeweller Colette Hazelwood:
Senseless 2004
Colette collaborated with internationally acclaimed fashion photographer James Lightbown on his Senseless project. Her now infamous Hearing Aid Jewellery was used for the shoot. The Brief, was to explore the concept of sense deprivation and the visual metaphors that illustrate the loss of something we take so much for granted. (Model: Alexia Rochford Boss)
This collaboration followed a commission by Leicester City Gallery Hearing Aid Jewellery 2002. Colette was commissioned to make a piece of contemporary jewellery for a person with a disablity for the Adorn Equip exhibition. Her client, Ali Briggs was the inspiration for this provocative piece that clips comfortably onto her own hearing aid. Ali is an renowned actress and her most recent role was in Britain's Coronation St.

Let's celebrate the hearing aid instead of disguising it.
This piece has since been purchased as part of the MIMA (Middlesbrough Institute of Modern Art) permanent collection.
Photo by Fliss Shillingford.
http://www.colettehazelwoodjewellery.co.uk/gallery.html
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