Showing posts with label aging. Show all posts
Showing posts with label aging. Show all posts

Friday, 24 September 2010

the minds of elderly patients


In response to our new book Patience, Advance Nurse Practitioner, Fiona Roscoe has written:


Who are we to know what is going on in the minds of elderly patients as they sit dutifully in their chairs waiting for the next ward round or cup of tea?

It is a time when many are at their most vulnerable and reflective but sometimes due to disability and ill health are unable to express themselves. The artists of 
arthur+martha have patiently sat with these souls and helped them to unlock their thoughts. In doing so, not only do we have examples of unique creative art but also a new dimension in our appreciation of our most senior citizens. (referring to Stages of grief 1950 and Parachute Landing by Albert Burrows)

Fiona Roscoe RN DN MSc BSc(Hons) is an Advanced Nurse Practitioner (Primary and Urgent Care)

Tuesday, 7 September 2010

Close-reading PATIENCE - by Matt Dalby

Matt Dalby is one of several contemporary poets we asked to repsond to PATIENCE. Here, Matt traces a path between two pieces: Be Patient by Margaret Hargreaves, the poem that states the theme of the collection, and a self-exploration of Parkinson's Disease by Doreen Jones, Thee Thy Summer.

Margaret Hargreaves’ Be Patient includes the line ‘was a dressmaker’. There is a sense here that Margaret may no longer be who she was, or at least may feel she is no longer who she was. But it is not a sentimental, nostalgic, ‘when I was younger’ reverie. It is a lot more interesting than that. Here are skills and experience, here is something that makes the loss or impairment of capabilities with illness become more real. Here is something that is often hidden.

Anecdote. An elderly Muslim man in Trafford walking slowly around two parks supported on either side by two young women who appear to be his daughters. The sight is only striking because it is so unusual.

But this is to make assumptions. The assumption that ‘was a dressmaker’ refers to Margaret Hargreaves herself. The assumption of impairment through illness. The assumption that the women supporting the elderly man are his daughters. The only assumption for which there is any evidence is the first of these:

‘I call myself
a quiet person

was a dressmaker
if a stitch went wrong
I set it right
in two words, two small words’

But without knowing the author, and without knowing how the poem was put together it is a dangerous assumption to make. And even if it were a simple statement of fact about the author it only provides limited information. Many people could say ‘was a shop assistant’ and it would tell you precisely nothing about them.

Even so, this is a relatively straightforward poem in comparison to a poem like Doreen Jones’ Thee Thy Summer, which is much more fragmented. Thoughts are abandoned partway through, broken into fragments, and revisited later. The kind of fractures recur throughout the collection. Numbers play a large role in the text, as if they are fixed points within a generalized confusion:

’21 x pills a day’

‘fell 4 x times’

‘7 in morning’

Some numbers, especially 21, recur in the poem. So too does 7. The poem itself is arranged in six stanzas of seven lines in pairs across three columns, which might be read as three sonnets. But there is an ambiguity introduced by fragmenting the poem that means the poem need not be read down each column in turn running left to right. It is also possible to read each line across the columns, or the first stanza of each column in turn. Both of these reading give a poem in two halves of 21 lines each.

The first stanza gives a good sense of how the poem is constructed, and contains words and phrases that recur in the rest of the poem:

’21 x pills a day
make sweet thy beauty
parkinson’s you see
started vertigo
dizzy all the while
fell 4 x times = smashed face
started parkinson’s’

’21’, ‘make sweet’, ‘thy beauty’, ‘parkinson’s you see’, ‘started’, ‘vertigo’, and ‘parkinson’s’ all appear again. Even while broken into pieces the poem circles itself, its own areas of concern, giving it a unity and coherence it might initially seem to lack.

This does not seem designed to imitate any particular mental confusion so much as it feels like an act of resistance. Illness is defined more by medication than by symptoms, and both are an inconvenience. And here and there some aspect of a person (the subject of the poem? the author?) keeps slipping out. This is not loss but an ongoing negotiation with life and illness.

From the four sections I have read this idea of an ongoing negotiation with life and illness is a consistent theme throughout the book. For me this allows for a far greater human interaction and identification with the experiences of the authors than some sentimental veneration of their wisdom and remembrance of things past. To acknowledge the frustrations, pain, anger and limitations of age-related illness is surely more healthy than a vague sympathy. It does not make for a comfortable read, and the poetry is not instantly recognizable as the personal reminiscence and anecdote in conventional forms you might expect from a project of this nature. To my mind this is a good thing. It is more interesting and compelling for the reader.

It would be interesting to know whether the experience of creating the book was more satisfying for the participants than just writing a set of conventional personal reminiscences. Certainly one of my initial thoughts in response to being approached to comment on the book was that experimental approaches, being less codified, less familiar, might be more accessible than more conventional poetry. We all have an idea of what conventional poetry should look like, and that it has a number of rules that we do not understand. These preexisting ideas can limit what we feel is possible, and therefore what we ultimately produce. Whatever the truth, the more experimental approach has led to a book you are actually likely to read and return to, rather than pick up out of sympathy and never open again.


Matt Dalby is an experimental poet whose works take shape within multiple approaches and mediums, including sound and visual making. His blog Santiago's Dead Wasp is a key journal of experimental writing and related events in the North West of England, as well as a document of Matt's ongoing project. His extraordinary communal Mutapoem is world-embracing.

Friday, 3 September 2010

Reading PATIENCE x 2

Responses to our forthcoming publication PATIENCE, a collection of art and poetry by older people in hospital.

I love the fact that your work nurtures older people and dignifies their experiences within the context of an environment that conspires to be demeaning and perhaps dispiriting. I especially appreciate the contrast of individual voices on found packaging such as medicine boxes - items which could assume disproportionate importance within a hospital or care home. Placing words and testimony on medicine packets, especially words that are so cheeky, wise and poignant, make me laugh, and smile, and cry.

(Penny Anderson, Journalist)


As a piece of work itself I think it has a real simplicity and tenderness that opens something very ordinary and yet profound in the reader. It makes you care, and makes you think for a little longer about these experiences and what they mean, to you and to them and to all of us.

(Amanda Kilroy, Medical Researcher)

Tuesday, 30 March 2010

golden lads and girls



they look like me
but
not
of
limb
the girls of summers gone
they look like me
but aren't
like me:
age it's


a different youth


age:
an old man loved is winter flowered
look at me child
of flesh but
not of brain
they know
such
a lot
of things these days



May Ferris

Wednesday, 24 March 2010

now my genius has gone


the brain in its
skull-like maze
now my genius has gone
it’s difficult to say
describe everything, list everything

lost everything
(want it back)
can’t remember why I’m here
memory caught in a trap
it stiffens

spaghetti maze
fingers thick
disturbed at all times
keep building roads at the end of a whip
people say they know me

I wonder at it
puzzled, caught in a trap
now my genius is some worthless song
I use a lever a little
and it comes back.

Group
speak poem
12-16 March 2010

Wednesday, 17 February 2010

grit

you first come in you’re sick and that slows you can’t be mithered grit me teeth and bear it grit me teeth and keep me head down

called up 1939 went to France Dunkirk had a bad time a bad time

driven to distraction by all the waste of time getting angry doesn’t help you got to somehow slip into a lower gear get through these long days

in a truck for cover

get up when the nurses start clattering early habit of a lifetime bed late after the noise of the medicine the nurses overworking I’m surprised how cheerful they keep

tried to get in the little boat trousers round my neck and the trousers floated away

if you’ve got a decent book get what exercise you can push this wheelchair up and down

people fighting to get on the boat

that’s one thing I never do – give in

and keep a smile on the faces of the nurses

you’ve got to make your pleasure – is there anything that pleases me? - yes everything - grit me teeth and grin

E Wooley
2008

Thursday, 28 January 2010

time disappears when you're in hospital


time disappears when you're in hospital
nights are very long
days are just as

people seem to think I need to be entertained
I’m happy reading


among my friends of recent years
humorous stories and jokes

memories you create for future generations
remembered as jocular
things you do with your grandchildren
they will say

I remember
Granddad remembering

don’t
do an awful
lot

when friends die
certain instances trigger good/sad
life goes on
days are very long
nights are just as

forget awhile
then something happens remember

experience
death brings
memory



anon
24th Nov 2006

Amputation

(I’m not depressed but)


I was am
putated
that made a difference
cos I’m reliant
I have good glasses
hearing aid
amput
ation was the worst thing
that’s happened
I’ve got no dates

to rely on
in somewhere like this

the way of life
don’t get as many visitors
the way of
sedentary
dependent
life
adjust slowly
am puttee
(they’re very good to you here
I’m not stopping)
lived alone since
father died
long time ago can’t
think when
it’s terrible don’t think
I’ve got it written
I’ve not written when people
left

I’ve no dates
just addresses

– even got phone numbers –
that don’t mean any
thing to me

(I can’t even remember why you’re here)

the worst was

it slows up gradually
a cold fish cold

I’ll have to ask
never thought to make a note
gosh I can’t remember
(when did the war finish?)

I think my mother died
and I don’t think I’ve got a diary with
those dates
started and
retired gosh
– wait
I’ll get my diary
I’ve not got any dates at all
none that matter.

(I can't even remember why you're here)


Anonymous
2006

Yearby yearning



In the mirror I see a reflection in the glass
Looking growing yearby yearning
Time goes by

Time passing yearby year
Flowers slowly
Life suddenly

In the mirror
I see a reflection in the glass

Getting sad and old
Life slowly gone
Time passing
Suddenly tears have past

Eyes blue grey
Pale and small
Getting bluer
Going blind

My memory
Now my voice
Learning to talk + remember

Not sure I believe in angels
Maybe life could start again
Perhaps?

Summer sun
Growing yearby
Sand rain marred seeds growing
Ending
Growing

In the mirror
I see a reflection in the glass

Ending
Growing





Pauline Eaton
Oct 2006

photo copyright Lois Blackburn 2006

Thursday, 14 January 2010

today: the garden


I’m filled with roses

remember
hydrangea

lilac fuchsia
snowdrop bluebells

reawakened
a memory of those flowers

a memory of
my brother
I looked up to him
there was a birdcage a stork dove water round
cleaned out and painted
in Manchester I can remember good times

not the weeding
not the daffodils

I don’t forget
granddaughter swimming, memories
jigsaw

such good fun in the war
shrapnel
all them bits that were fired up
red hot in a can take it back in a biscuit tin
10 shilling for the lot

Strines Rd Marple
walking down
to school

never been back you’ve got to
look forwards
I’ll always do that

to the shelter underground rocks
school from Stockport from Cheadle
our bus fare for food
back to the family 3 sons and a daughter

today:
I’m filled with the feeling
being upside down

remember
a number of various
I can remember it all
saying it that’s a different thing.



Victor Richardson, Joyce Knibs, Tom Dolan, Victor Richardson, Dorothy
(+ William Carlos Williams – from Asphodel, That Greeny Flower)
November 2009

Tuesday, 12 January 2010

the old grenadiers


you’re 96 years

thy image

an old Grenadier



at my age seem to be past doing

but these particulars are not

my measure:

overthrow 3 bad falls



oh the old Grenadiers the servants, the soldier-servants

don’t create alarms

just keep idling away



pain's

red medal round my neck

in defeat

this day I forgot



lay on the floor to the weary night

though new-fangled ill

this old dog’s prouder still



Ron Miles (Curzon) 1st July 2009



constancy

hospital
a huge mountain between my
heart and tongue
ill-starred
not important
rubbish
brought here and left
a mountain
if I could pray
prayers would move me

***

Fellows in the Firmament!
it is up to you to get right
down to you, getting better
(***
certainly is
***)
to be helpful with those helping you
determination will make a difference
to be very patient
is a difficult art
you’re not born such
constantly
learning
you get old
as the northern star.

Anonymous
11 September 2009

Thursday, 7 January 2010

Little tree

December 4th and a Christmas poetry session that would not be complete without E E Cummings Little tree. It was nice to see the marked progress of the E1 group, Tom had gone home, Joyce was able to say certain words, Victor was much more able and we had two new participants Philip who could not hear and Joan who liked to sleep. We constructed poems of Christmas feelings past and present and looked into the little tree poem to create our own version. The group were wonderfully open and when Joyce struggled on a word Victor would step in. A tree poem was imagined and constructed with the winter leaves were withering away, but Victor took me aside after the session and asked us to paint a more positive image, I hope that comes across.

The afternoon session was spent with four remarkable women, one whom had taken part in the previous workshop. Two sisters Eileen and Elsie told me their ways of being, and Ida described the most intense relationship with her own Aunt. What struck me when speaking to these women was how much loved ones come into our minds when we are alone and still and what a reflective time of year it is. The sessions always are a journey, as you do not where they will lead and who you will meet; in the words of Ida “it’s a Peter Pan journey.”

Tuesday, 5 January 2010

Auntie Ida


was kindness itself

well if you were looking at Auntie
you were looking at me

and looking at me you’re looking at her

just like her
she’d take what I’d say
the only one who could give me a hug
and get away with it

vivid in my mind
If we were both having a good day
nobody could say anything to us
nobody could touch us on them days

if we were having a bad day then it was

I’ve had big journeys all my life
stepped off bridges wider than the widest road

the day you feel it coming all that has been the truth:
thoughts of Auntie Ida so vivid
could say that Ida just walked past the window

someone with a coat like Auntie Ida
I’d insist it was
the two of us stood waiting
for Ida to come through
her face
is it like mine?
anxious to see her
picture
a lovely little daisy
if I could express it

Auntie Ida’s just come in
you haven’t got to be frightened of her
on
a miserable Wednesday
I couldn’t describe her on Wednesday
she’d be so down in the world

Wednesday was one of her bad days
if I could throw Wednesday away
I always think something happened that day
a deep loving August day
she’d change into somebody

but for every bad Wednesday
keep it love
Because you’ll be wondering if tomorrow
she'll be flying through the window
like Peter Pan

Ida Regan
Ward A10
4th December 2009

'Depression is a serious illness. Health professionals use the words depression, depressive illness or clinical depression to refer to it. It is very different from the common experience of feeling miserable or fed up for a short period of time.

When you’re depressed, you may have feelings of extreme sadness that can last for a long time. These feelings are severe enough to interfere with your daily life, and can last for weeks or months, rather than days.

Depression is quite common, and about 15% of people will have a bout of severe depression at some point in their lives. However, the exact number of people with depression is hard to estimate because many people do not get help, or are not formally diagnosed with the condition.' From NHS choices website.


For further examples of arthur+martha poems, please visit http://arthur-and-martha-poems.blogspot.com/

Monday, 4 January 2010

Guest writer

It was definitely the beginning of this cold spell, when I went to do my first poetry workshops at Stepping Hill Hospital on 6th November. I was nervous, especially as I was going along to the stroke unit E1 where a long time friend of mine was a patient and would now be a participating in this morning’s workshop.  I was also confused to find that B5 was no longer, and so I rearranged my afternoon session for the old faithful A10.

The morning session on E1 was in a group with people who had recently had a stroke. Each of them had been affected differently. Joyce had lost her speech and was working on gaining it back, Tom had lost the use of his left hand and was slowly trying to adapt to using his other, Victor could no longer write and Muriel was in a similar position.

I felt so much compassion for all of them taking on board the activity of the morning, which was to write how they were feeling using William Carlos William’s poem Asphodel as loose inspiration.
I considered what a difficult task this is to do, when the entire group had been to places recently within their own bodies they would never have imagined.  I was greeted with warmth, tears, sharing, deep thoughts and exasperation.  But not once was any frustration aimed inappropriately, the heightened emotions allowed creativity to happen and vice versa.
William Carlos Williams was chosen as an established poet who suffered a series of strokes, he spoke of his weakened physical state giving him strengthened creative ones. His poem gave way for much discussion and interpretation in the morning session and carried on to A10.

The afternoon session was spent one to one with two patients, who openly admitted liked to talk.  We went from the past to the present, through people in their lives and the daily minute. There are so many levels of creativity I see when finding people to engage in these sort of sessions, from church, to dancing, to making clothes, to bird watching, we are each as unique as our own passion placement, but underlying these writings show we all have the same essential qualities.
All in all an awe inspiring day.

Tuesday, 29 September 2009

the inner part


in last week and three weeks before

bowel trouble

(nice)

test me kidneys

mind going round

which is what and what is

ignorance last week and three before

toboggans into bowel trouble

embarrassment

that you need

to tell them inner

things

(nice)

ungrateful bowels

heart and me blood test

results

unconvinced

test me test me trudges up

mind going round to ignorance again


anonymous 8th July 2009


image © Lois Blackburn 2010.

for more examples of arthur+martha poems, please visit http://arthur-and-martha-poems.blogspot.com/

Friday, 18 September 2009

marvellous encounters of my life O little drops

This afternoon (Fri 11 Sept) I worked with people in The Meadows, which is among other things a day centre for people with a dementia diagnosis. The two staff (Ann and Anne) and myself had the luxury of working one-to-one with participants.

We'd talked about memory and the loss of memory on other occasions, with my noting the conversations, allowing threads to build into a complex weaving. Today, we began with seeds of Il Pleut (Appollinaire) and Kaddish (Ginsberg) two of the most well-known 20th Century poems - and then span them away into rain and recollection.

The poem was collaged together from people's memories of rain, memories of forgetting, and image-play of rain symbolising the liquid borders of these states. The blurring of edges, of shapes misting, thunderbursts, and the sensual beauty of rain perceived through our bodies.

The group of three participants worked quietly, concentrated. This was a very different quality of attention than that of the first two talk-shops. Today was most definitely a serious enterprise, fully meant. The subject of forgetting is talked about in this place with humour, anger, fear, insight...

Broaching it felt like an extended faux pas, the sound of a taboo breaking. To my ears, the piece that emerged had both delicacy and directness. A three-voice reading of it flicked between joy and pain. Mostly joy. Anne said afterward, dementia is often depicted on TV with doomy images and pompous classical music. But it is not necessarily a dark journey; light does come through.

As I left, I was full of my own memories of The Meadows, which is where Lois and I began our first collaborative sessions nearly ten years ago. I kept expecting to hear the clicking of those Blackburn high heels and her big bursts of laughter.

the unknown

My dad rang this morning, wanting to share his delight in the promptness of his GP and at last getting a diagnosis for the pain he has been suffering. He phoned the surgery at 9.30 and his doctor was round to his house in 5 minutes!

Like so many people he finds it difficult to ask for help, particularly from health professionals. This is the first time I can remember him asking for a home appointment, whether this is out of the 'fear' of doctors, or not wanting to bother them- prehaps a combination of both, I'm not sure...

He's been suffering with lots of persistent pain, and was today diagnosed with 'Sciatica' as he described it 'its what old people get!' He appeared to get huge pleasure and relief from having this 'pain' named, (and with the promise of a referral to a physiotherapist.)

Over the years meeting with older people in health care settings, one of the biggest issues to wellbeing is not knowing- not being able to put a name to a condition. Often it seems a case of trial and error, to find out what the problem isnt, rather than what it is. Then there is the emotional pain of waiting, waiting for test results, waiting for doctors rounds or appointments with specialists. Recently I experinenced a form of this first hand. When pregnant I had the Amniocentesis test for chromosomal abnormalities and fetal infections. The time between my blood tests results, recieving the news that I was in the high risk catagory and the amniocentesis, the time of not knowing, not being able to plan, feeling like I couldnt even bond with the baby growing inside of me- felt never ending and was horrible. Thankfully for me the tests were clear.

It seems that having a name to put to something, you can start to tackle it both mentally and physically.

http://en.wikipedia.org/wiki/Sciatica

Wednesday, 2 September 2009

"A bookful of things you're left wondering."

Today I ran a morning session, moving chair to chair, bed to bed. Working this way loses the group dynamism, but gains intimacy. Sometimes the people who are quietest in groups are the most open one to one. There are little glimmering insights that lead right to the heart of people's lives.

One such moment occurred today, in a conversation with a lady who is normally very quiet. She is unsure of her own speaking, the use of words sometimes baffles her. But this lack of certainty makes her lucid in a different way. She was talking about old age:

"People expect you to live the same time again and it doesn't give you time to live now. The time it happened, your reflexes were different but now people expect you to have the same feel. Your body reacts differently, you are not capable of dealing with that response...

Your body reacts to time and place. The body is accepting, whereas your mind is elsewhere losing the day-to-day, instead of developing what's within. Your body absorbs feeling, real life itself. "


This was said with great humbleness, a distrust of her own mind, of her own idea of herself.

Wednesday, 12 August 2009

ever


a stroke: it’s like freezing a piece of meat

waiting and waiting and waiting and waiting
a cancellation
put me back again
a slight stroke
couldn’t move my arm
so I lift it with the other one
don’t let it lie dead
rub the back of your hand
keep it going

and then it’s un-frozen

waiting and
try to keep moving
haul yourself
with a walking stick
to your exercises
tried, tired and knackered
they train you, so
if you fall in the house by yourself
trapped

but only in part and some remains

waiting and
trying to open the door
try to get to the phone
try to climb a step, up four inches
(one bad leg, two arms, nothing 100%)
terrifying thinking about it
don’t think, try to
get on, to stand

on ice.

Anonymous
24-31 July 2009


for further examples of arthur+martha poems please visit http://arthur-and-martha-poems.blogspot.com/