Showing posts with label stroke. Show all posts
Showing posts with label stroke. Show all posts

Wednesday, 22 September 2010

schools of nursing


In response to our new book Patience, Advance Nurse Practitioner, Fiona Roscoe has written:



The stark honesty and desperation expressed by a stroke patient in 'Ever' provides a frightening insight into her world. I would advocate that schools of nursing examine their curriculums and ensure that students are given an opportunity to experience the art produced from this project as stopping to listen to what patients are telling us is key to knowing what needs to be done to help them.
Fiona Roscoe RN DN MSc BSc(Hons) is an Advanced Nurse Practitioner (Primary and Urgent Care)



a stroke: it’s like freezing a piece of meat

waiting and waiting and waiting and waiting
a cancellation
put me back again
a slight stroke
couldn’t move my arm
so I lift it with the other one
don’t let it lie dead
rub the back of your hand
keep it going

and then it’s un-frozen

waiting and
try to keep moving
haul yourself
with a walking stick
to your exercises
tried, tired and knackered
they train you, so
if you fall in the house by yourself
trapped

but only in part and some remains

waiting and
trying to open the door
try to get to the phone
try to climb a step, up four inches
(one bad leg, two arms, nothing 100%)
terrifying thinking about it
don’t think, try to
get on, to stand

on ice.

Anonymous
24-31 July 2009

Tuesday, 21 September 2010

Patients reading PATIENCE

Today was our first day on the wards with the new book PATIENCE, a deep baptism. Reading these poems in the place where they first came into being, often in circumstances of great suffering, was very moving - the response from patients was powerful and generally positive, though sometimes they too were a little overwhelmed. It was as if we were finally talking about the 'elephant in the room' - everyone's relieved, but it's an awkward moment.

"It brings a new outlook from my point of view, reading this book. It makes you think of something else in life, apart from yourself. You cheer one another up." (Madeleine)

"It's terrible in here, impossible to describe. You have to live it to understand. It can help a little to hear other's experiences. A little. Please come back again and read more poems." (Douglas)

"Very good that, very true. Pass it on... It's openness. You bring things out in people, so people don't close to you... a book like this is useful to read, helps with the patience, you need a lot of patience in here." Jean


We also shared the book with staff, many of whom remembered particular people featured in the collection. As so often happens, they said that they wished they still had time to talk to the patients as we are able to do.

"The emotional side gets overlooked. Without that, you are not treating people in depth. If a patient is in the process of getting better and they have psychological or emotional problems, they won't get better as easily. To verbalise and express their problems, they feel lighter, better... If it's repressed it affects them.


Conversing with them helps. They are away from their environment, in fear. Time is a factor. Take a minute or two, take time to listen and reassure them. Reading them this book will give them an idea of what a patient can expect to go through."

(Staff Nurse Mioji Baloguh)

On E1 the Stroke ward, we read poems to patients Madge and Marjorie, they commented:

"You feel very shaky and that, not kind of with it, you can't vision yourself. This book, it gives other people something of what you feel like."


A daughter, visiting her mother who'd had a stroke two weeks ago, said:

"The book would be nice for when they start recovering and can start reading - if they can't put their feelings into their own words, they could use the book to help." (Amanda)

We hope that PATIENCE will be helpful on the wards, a conversation opener, a comforter and perhaps a communication aid as Amanda describes. There's a point when a book, having been published, starts make its own way, separate from the the makers. As we put PATIENCE out into the world, it is now starting to do just that, to have its identity inscribed by its readers.

Tuesday, 13 April 2010

ever

a stroke: it’s like freezing a piece of meat

waiting and waiting and waiting and waiting
a cancellation
put me back again
a slight stroke
couldn’t move my arm
so I lift it with the other one
don’t let it lie dead
rub the back of your hand
keep it going

and then it’s un-frozen

waiting and
try to keep moving
haul yourself
with a walking stick
to your exercises
tried, tired and knackered
they train you, so
if you fall in the house by yourself
trapped

but only in part and some remains

waiting and
trying to open the door
try to get to the phone
try to climb a step, up four inches
(one bad leg, two arms, nothing 100%)
terrifying thinking about it
don’t think, try to
get on, to stand

on ice.

Anonymous
24-31 July 2009

Saturday, 20 March 2010

my message is to you


hope is your life
together we
hope
each looks after each
friendly nurses speak
look for
hope is swift exchange
my tablets my routine
hope for this
take pills like new ideas

swallow
hope
I listen to children’s advice
swallow’s wings
get on with life’s hour
accept
strokes hearts bowels propaganda
each other
what journey you’re facing
and what hope

do you get?
(would you like to join our discussion?)
everyone’s lonely in their own
true journey
hope is swift
can’t take it out
can’t shove it away
we’re all
in the end
swallow’s wings.

Group
Cherry Tree Hospital
2009

Tuesday, 12 January 2010

the speech therapist



when my love swears that she is made of truth

the words come down the wrong half

we can’t - we are – learning unlearned

I do believe her, though I know she lies

in the world's false subtleties
not the half, the other we will learn to speak

although she knows my days are past the best

helpless helpless, paralysed

I credit her false-speaking tongue
it’s coming spent, it’s half through

but wherefore says she is not, she is
hard to describe

therefore I lie with her, and she with me,
it’s half through, we hope it will


BE.


Anonymous

31st July 2009

Debilitated

crying
with frustration
why
don't you listen?

pain:
why d'you do this?
time
cry with clenches

get up
from your wheelchair
God
-forgotten prayer.

Jean Cheatham July 2009

my eyes they view the afternoon (part 1)


went down and that was it

going to make my Aunt a cup of tea

a cup of tea and went down to the floor

woke in hospital

*

try to get up

image shouts

*

where am I going?

different than a normal fall

try to get up , couldn’t shout or anything

don’t remember the brain scan

*

I woke through heavy sleep

in hospital my rest defeat

*

cry with aggravation

particularly in the early stages

can’t even get to your own wardrobe

have to ask for everything

shadow’s form to ask

everything against your nature

against your nature

always wanted to do things myself

accepted it more than to begin with

in terrible pain, chronic pain/relief

*

my eyes they view the afternoon

but when I sleep

*

get back to my Aunt

I care for and love

only the two of us

a normal quiet life, the living day.

*


Lynn Holt

1st July 2009

my eyes they view the afternoon (part 2)


The living day

my eyes they view the afternoon

but when I sleep the floor

try to get up my way

the image shouts

where am I going?

I woke through heavy sleep

in hospital my rest defeat

shadow’s form to ask

everything against your nature


Lynn Holt 1st July 2009

starcrossd


what time is it?

it is she may ring by every star

she may not forever now

*

at home rather know

than feel and fell

pain it’s getting better

lovers tell

*

my daughter may ring

waitinghome and fellwaiting

*

someone came to me

saw me when

I fell

*

waiting for my daughter

what time is it?

it is she may ring by every star

she may not forever now

Anon
8 July 2009


Monday, 4 January 2010

Guest writer

It was definitely the beginning of this cold spell, when I went to do my first poetry workshops at Stepping Hill Hospital on 6th November. I was nervous, especially as I was going along to the stroke unit E1 where a long time friend of mine was a patient and would now be a participating in this morning’s workshop.  I was also confused to find that B5 was no longer, and so I rearranged my afternoon session for the old faithful A10.

The morning session on E1 was in a group with people who had recently had a stroke. Each of them had been affected differently. Joyce had lost her speech and was working on gaining it back, Tom had lost the use of his left hand and was slowly trying to adapt to using his other, Victor could no longer write and Muriel was in a similar position.

I felt so much compassion for all of them taking on board the activity of the morning, which was to write how they were feeling using William Carlos William’s poem Asphodel as loose inspiration.
I considered what a difficult task this is to do, when the entire group had been to places recently within their own bodies they would never have imagined.  I was greeted with warmth, tears, sharing, deep thoughts and exasperation.  But not once was any frustration aimed inappropriately, the heightened emotions allowed creativity to happen and vice versa.
William Carlos Williams was chosen as an established poet who suffered a series of strokes, he spoke of his weakened physical state giving him strengthened creative ones. His poem gave way for much discussion and interpretation in the morning session and carried on to A10.

The afternoon session was spent one to one with two patients, who openly admitted liked to talk.  We went from the past to the present, through people in their lives and the daily minute. There are so many levels of creativity I see when finding people to engage in these sort of sessions, from church, to dancing, to making clothes, to bird watching, we are each as unique as our own passion placement, but underlying these writings show we all have the same essential qualities.
All in all an awe inspiring day.

Thursday, 8 October 2009

Wednesday, 23 September 2009

Interview with Sister Charlotte Moran. Stroke Ward, Stepping Hill Hospital

Strokes: people can become withdrawn, quiet, can be aggressive, can be tearful. People often say, you hear about strokes, but until it happens…


It’s hard to tell what a stroke will bring. You can have a mini-stroke that 24 hours later has been resolved. Other patients can be here 10 months. In the acute phase, people need to be looked after a lot. Then they move towards rehabilitation. It’s goal setting.


It’s about the denseness of the limbs – not being able to hold up your leg or arm, like a dead weight, with no power. But that can come back working with OTs and physios. Patients often talk to these people a lot, thinking about how they’re going to cope at home. Talking about the little things really. When they go home I always say goodbye. A shake of the hand, a kiss of the cheek. It’s the little things that make people tick.


Advice about strokes is improving: diet, lifestyle, smoking, therapy, advice about driving… The Stroke Association is good and the government have addressed it. Strokes have been a key area, like reducing waiting times. Awareness has improved through the media. So people know that smoking, high blood pressure, stressful job might have contributed to them having a stroke. Others just won’t believe it, whatever you tell them.


Do certain kinds of patients recover more easily from a stroke? Someone who is motivated has a reason to improve – a family, a holiday cruise booked, things to look forward to. Trust – trusting the staff – this really helps. We build a therapeutic relationships and trust is a big help with that. Humour – often people with a good sense of humour do well.


The basic care we do respectfully. A lot of trust is needed. What’s said (between nurse and patient) is in confidence. As a nurse, one of your codes is confidentiality. We are also advocates for people who perhaps can’t voice their own views. Often gestures can be used to communicate. Communication boards, picture boards, a basic YES/NO on picture cards. I’M HUNGRY. I’M IN PAIN. Someone might be able to smile. Communication takes a lot of time, but we’ve got to find a way. And then when it gets to the more complex things such as ‘I’d like some crumpets for my breakfast’, it’s difficult.


A typical stroke patient would be someone who lost movement in an arm, had swallow difficulty and some visual problems – bleeds or blockage can affect vision, creating one-eyed vision, tunnel or slit vision leading to a high risk of falling.


We are building therapeutic relationships, holistic – they’re not a number they’re a person. We orientate them to time and place, say hello at the start of the day and bye at the end. We have ex-patients who come in as volunteers and give out teas and cakes and sit with the patients, having a talk. Letting them know it’ll be OK.


Do I get stressed? You have to look after yourself, be aware of burnout. Space your shifts, take holidays, make sure you’re eating and sleeping properly. We do have time to debrief or reflect, that’s part of nurse training, but it is down to the individual.


I have the ability to switch on or off. During the car journey home I can switch off and become Charlotte, though not always. Sometimes I get upset. But if I cared in a strong way about every patient that died I’d be tearful all the time and couldn’t support anyone. My job is to support the patient and the family and I have to be there for staff as well. The staff know the door’s always open. Patients can be aggressive and upset the staff. I’m there for them, in the thick of it.


The staff work as a team, it’s a collective effort. Everyone needs to know their job and all bring something different. I might be very focussed and procedure-led, whereas someone else will be interested in having a chat about what you had for your tea.


I think you’re born with caring in you. Most of the women in my family went into caring: nursing, social work. I was caring for children from a young age. You don’t run out of caring, even when you’re exhausted and don’t know how you’re going to find the energy to drive home. You get up next day and come back with the same amount of caring. I’d say that’s true of most nurses.


I was born with it, always going to be a nurse. Went into it from Uni. Student Nurse: you get your tunic and your set of keys. But you learn how to actually be a nurse gradually. At first, some days are good, others not. You know if you’re made for this. Can you deal with the smell of a ward?

I listen out the whole time I’m here – it’s like a sixth sense listening to all the bays, making sure everything is alright. I just do it as part of the job. Some days you feel the responsibility. I’m paid to be accountable, my job is to make sure everything is to standard.


Patience: take a breath and count to ten. I do that regularly. Patience is not one of my qualities, I have to work on it. My family say my patience runs out at home – my mum and aunties are the same. But here I’m full of sympathy.


Sister Charlotte Moran, interviewed by Philip Davenport 7th August 2009

Wednesday, 12 August 2009

ever


a stroke: it’s like freezing a piece of meat

waiting and waiting and waiting and waiting
a cancellation
put me back again
a slight stroke
couldn’t move my arm
so I lift it with the other one
don’t let it lie dead
rub the back of your hand
keep it going

and then it’s un-frozen

waiting and
try to keep moving
haul yourself
with a walking stick
to your exercises
tried, tired and knackered
they train you, so
if you fall in the house by yourself
trapped

but only in part and some remains

waiting and
trying to open the door
try to get to the phone
try to climb a step, up four inches
(one bad leg, two arms, nothing 100%)
terrifying thinking about it
don’t think, try to
get on, to stand

on ice.

Anonymous
24-31 July 2009


for further examples of arthur+martha poems please visit http://arthur-and-martha-poems.blogspot.com/

Thursday, 30 July 2009

PA-TIEN - ENCE



Being back in the hospital environment forcefully reminded me of how these places can be simultaneously strange, estranged and uplifting.

The morning was spent in Ward 5 at Cherry Tree, where a group of patients made me welcome and we sat together around a dining table that also serves as elbow rest, pillow, reading stand, desk for nurses, sounding board for angry fists and, mostly, a meeting place. Ill health is of course one of the great levellers; with this comes a great mixing of strangers and neighbours. They come quietly, privately together into understandings that are among the most profound that humans share. They also annoy, scare, amuse, alienate each other.

”PA-TIEN – ENCE!”

On this day we talked about patience and how you get it. ("Patience, you learn under sufferance.")


Symbolically, the two people at the head of the table were at the poles of patience and impatience. Richard was bristling with energy and annoyance that he couldn't expel because his 83 year old post-stroke body was beginning to seriously slow with wear and tear. Angela had recently suffered a stroke and was still in the first stages of recovery, but she emanated calm. We chatted around and about the experience of being in hospital and what gets you through. How to observe the collapse of your own body and still not succumb to inner collapse. How to cope with "Waiting, waiting, waiting."

Partway through we were joined by staff member the ever-supportive Susan Hughes. She listened awhile, then told us about Want It Now, or WIN, an acronym used by early teens to describe the process of heavy-pressuring their parents into buying the latest clothing/computer game/hairstyle/generic product for them. The conversation turned to the childhoods of the patients - "We were never prepared for pleasure, we were prepared for work."

Several of the women described in detail cleaning the steps of their houses with the 'donkey stone' when they were very young. The grind of working lives, that began not with work but early childhood. And yet the happiness was there too, they insisted. So how do you make sense of that, I asked.

And in the midst of the replies, Angela raised one finger in the air, and pronounced very slowly but clearly: "PA-TIEN - ENCE!"


Thursday, 9 July 2009

fix my brain



fix my brain and hope that would fix everything
my brain that will fix everything else
not a plaster big enough
a plaster wouldnt cover my arm
my hand
‘please put everything right for me

Ivy Burton
8th July 2009

A stroke is a brain attach
"A stroke happens when the blood supply to the brain is cut off and brain cells become damaged and die. It has an immediate effect on body functions (like moving arms and legs) and mental processes (like thinking, remembering and understanding language). Sometimes the symptoms last a short time- called a transient ischaemic attack (TIA) or mini stroke. In other cases, the symptoms may last for a longer time."
The Stroke Association.

Friday, 3 July 2009

Stroke Ward


In the afternoon, I met up with Jean Lally who was kindly offering her services as a volunteer. We had our first session at the Stroke Ward at Stepping Hill Hospital, Stockport. Its always going into the unknown when you start at a new venue- the participants, the staff, the environment all are to be discovered. We worked with three women, each one shared with amazing candor their experiences - one had been in hospital for 28 weeks and was fighting depression, God and her disability, she was full of anger- 'if I don’t hurry up I’ll be dead' Another women was the main carer for her Aunt, the determination to get home- so that she could resume her caring responsibility our conversation was humbling..'to get well as soon as possible and get back to my Aunt that I care for and love- there's only the two of us- just want a normal quiet life, anything would do.' And then there was the woman who spoke in such a matter of fact way about her devastating conditions 'I have not only one problem, not only a stroke but Inclusion Bodies Myisitis- a form of MS or motor neuron a muscle wasting disease. There's no way to stop it, no way to help it, not for me anyway.'

All three women shared such strength and determination it was inspiring and an honor and a privilege to talk with them.

Wednesday, 1 July 2009

Stroke



Try to get up from your wheelchair- its awful- you can't. Sometimes you cry out with (clenches fist)

You do, I can't explain how depressing it is. You have to ask someone if you can go to the toilet, sometimes gone bursting and there's no-one else.

anon
1st July 2009

Monday, 22 June 2009

importance





Hallucinations, mainly of a visual nature, are considered to affect about one-quarter of patients with Parkinson's disease. They are commonly viewed as a side-effect of antiparkinsonian treatment, but other factors may be involved.' 'BRAIN a Journal of Neurology' http://brain.oxfordjournals.org/

importance

a box of chocolates
a little boy running back
down the ward
to say goodbye to grandfather
remembrance

(in here it’s)

waiting, all this waiting
captured, a refugee, loss of furniture, loss of house
you can’t make a bed a home
I don’t want to be unconscious
in their presence


(in here it’s nice)

hallucinations come with the pills
enjoy them, visitors are medicine
taking the mind to some other place
if you don’t have a dream
you’ll never have a dream come true

(in here, it’s nice a little)

uncertainty is my home
a lost person, a dispossessed person
you don’t feel the bed is yours
I’m interested in life
I’m having to change my life

(in here it’s nice, a little bit, but)

waiting to die it seems
spend the day getting the button right
getting the zip right
learning to
walk


Raymond West and Mary Mitchell
11 June 2009

Tuesday, 26 May 2009

Age



the depth, the death
of winter as you grow older
everything fades becomes fuzzy
the depth the very cold
retreat from Moscow
you cope just cope
think of Napoleon retreating
have a picture in my mind
Napoleon in a sledge
arthiritis
a stroke
diabetic
still ticking over
we, the cold

anon
2009

have you any thoughts or observations on the aging process? we would love to hear from you....

Monday, 25 May 2009

Strokes


A stroke is a serious medical condition that occurs when the blood supply to the brain is disturbed.
Like all organs, our brain needs the oxygen and nutrients provided by our blood to function properly. If the supply of blood is restricted or stopped, brain cells begin to die. This can lead to brain damage and possibly death.
NHS choices website

‘I get on with life hour to hour
have to accept, get on with it
strokes – don’t know what you’re facing
everyone lonely in their own way
but you can’t take it out on other people
got to get on a journey
soulsearching.’

anon 2009

‘It was explained by my daughter. She said: ‘Dad you’ve had a stroke.’ They had to find out what bit of me was affected. Initially speech was and then I found my arms (especially the lef) did not have the usual mobility. I still don’t know exactly what it was. I assume a small vein in my brain. I am 78, so one must expect things to go wrong…’

anon 2009

Have you or someone you care for had a stroke? what are your experiences of it? good and bad, we would love to hear your thoughts.....